Our Story: A Parent's Perspective on Pediatric Hospice and Palliative Care

Friday, October 7, 2011: 3:00 PM-4:00 PM
Primary Presenter:
Dianne B. Gray, BS
Area of Emphasis: Pediatric Palliative and End-of-Life Care
Learning Objectives:
1. Discuss communication disparities between care providers and families
2. Identify differences in pediatric care versus adult care from the parent perspective and identify ethical dilemmas
3. Evaluate a care plan from the "total family perspective"
This session provides intimate insight into the difficult yet rewarding journey of the pediatric hospice and palliative care family as it copes with Austin's rare neurodegenerative brain disease. Discussion will provide an inside look at family education, provider communication, access, POLST, medical ethical decision making, critical differences in pediatric palliative care, opioid use in pediatrics and  family dynamics. Attendees will learn how one little boy's journey as a ten year recipient of hospice care can impact how they care for families in the future.
See more of: 60-minute session
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